Wow! Jacob is 6 months old! We can hardly believe how fast the time has gone by. Six months feels like a major milestone as a family, but we have several other big moments ahead (read on).
The big news for this update: we found out yesterday that Jacob will need more surgery. In the process of getting him fit for a helmet to reshape his head, he ended up getting a skull X-ray and a CT scan of his head. These showed that he has "craniosynostosis" which means that some of the skull bones have fused prematurely. Untreated, this would result in a less than optimal space for his brain to grow, leading to increased risk for developmental delays. Since he's already delayed a bit, the surgery is even more necessary.
This surgery will likely take place over the next 1-2 months. Today, we met with a pediatric plastic surgeon who will also be part of the surgery. Fortunately, he suggested we do one surgery at at time. It's called a "barrel stave" procedure, which I thought my dad would appreciate as a winemaker. But the added challenge is his shunt, which will need to be removed and replaced during the surgery. We know this is the right thing for Jacob, but it's a big surgery! He'll be in the ICU for at least 1 day and then in the hospital for several more days.
As we are getting ready for surgery, we'll post more updates for sure! Love to all of you.